00:04:31 Dawn Meeks: Dawn Meeks HCBS ISS/GH Assessor Acentra 00:04:32 gillian mccarty: Gillian Burns-Director of Operations at ABC Casemanagement 00:04:32 Lauren Swager: Lauren Swager, Adult and Child Psychiatrist WVU CED/ABHWV 00:04:33 Beth McCreight: Beth McCreight, H2H Care Coordinator for the WV Coalition to End Homelessness 00:04:34 Heather Dodge: Russell Nesbitt Services BSP Heather Dodge 00:04:34 Mary Gibbs: Mary Gibbs PM SFC WVU CED 00:04:38 Julianna Hayden: Julianna Hayden A Journey Case Management and Advocacy 00:04:40 Tamara Hall: Hello. My name Is Tamara. I am a CPS worker from Fayette county 00:04:40 Jessica Noel: Jessica Noel - Case Manager at ABC Case Management 00:04:43 Anastasia Riley: Anastasia Riley, WVU CED Positive Behavior Support 00:04:46 Susan Given: Susan Given, Disability Rights of WV. 00:04:48 Courtney Bonds: Courtney Bonds CMA Aetna 00:04:50 Regina Desmond: Gina Desmond, Senior Advocate Disability Rights of WV I work with the Medley Class Members and others with Developmental Disabilities at the Psychiatric hospitals (Sharpe, Bateman, River Park and Highland Clarksburg) 00:04:52 Daniel Venegas: Daniel Venegas, Service Navigation Specialist for the West Virginia Coalition to End Homelessness. Work with high-acuity, vulnerable adults. New to the position 00:04:52 emily hunter: Emily Hunter Ohio county MIHOW home visitor 00:04:53 Sarah G: Sarah Graham, BSP Seneca Health Services 00:04:54 Stacy Broce: Stacy Broce, IDDW Program Manager BMS 00:04:55 Jenny Layne: Jenny Layne, LAWV's FAST program 00:04:55 Jennifer Logan: Jennifer Logan, LPC Aetna BH CM 00:04:58 Marc Wilson: Marc Wilson, WVU CED Specialized Family Care 00:05:00 Heather Merritt: Heather Merritt, WVU-CED, Positive Behavior Support Program 00:05:11 Kimberly Custer: Kimberly Custer, Case Management Supervisor at EastRidge Health Systems-IDD Waiver 00:05:13 Charity Register: Charity Register Regional IDD Case Mgmt Coordinator for Seneca Health Services 00:05:13 chris Nooney: Chris Nooney IDD Waiver Prestera 00:05:13 Melina Danko: Melina Danko, WVU CED, Family to Family Health Information Center 00:05:16 Sharon Engle: Sharon Engle, Waiver Program Director at Potomac Highlands Guild 00:05:18 Brandon Kijewski: Brandon Kijewski, BSP I Hopewell 00:05:26 Charity Carroll: Charity Carroll Northwood Health Systems. Mgr CM services 00:05:29 Kate Settle: Kate Smith HCBS ISS/GH Assessor Acentra 00:05:33 Rhonda Hite: Rhonda Hite - Director IDD Services Eastridge Health Systems 00:05:34 Kylee Philyaw: Kylee Philyaw HCBS ISS/GH Review Assistant Acentra Health 00:05:36 Mena Seyed-Ashraf: Mena Seyed-Ashraf, MA, LPC, NCC. CSED Case Manager at Aetna 00:05:46 Teresa Bhaile: Teresa Bhaile, WVU-CED Positive Behavior Support Program 00:06:02 Beverly Williams: Beverly Williams, LSW 00:06:19 Beverly Williams: Beverly Williams, LSW at Pierpont Center 00:06:31 Mary Wilson: Mary Lea Wilson, PAIS 00:07:01 Carrie Jessen: Social Worker/LTC at Martinsburg VA 00:07:10 Jennifer Spencer: Jennifer Spencer, MA, LSW, Vice President of Quality, Crittenton Services. 00:07:44 Suzanne Messenger: Suzanne Messenger, State Long-term Care Ombudsman 00:07:47 Ronnie Dulaney: Ronnie Dulaney WVU CCC Social Services 00:07:56 heidi thomas: Heidi Thomas, Westbrook Health Services. hthomas@westbrookhealth.com 00:10:59 Angela Malcomb: Angela Malcomb, RN, Seneca Health Services 00:11:48 Kimberly Corley: Kimberly.J.Corley@WV.Gov Social Worker 00:12:30 Colleen Lillard: Colleen Lillard, Ph.D. Clinical Forensic Psychologist WVU Medicine, BMED 00:25:01 Carol Marcinek: Carol Marcinek, BSP at Russell Nesbitt Services Wheeling 00:32:36 Lesley Cottrell: Has anyone run into this? Have you been able to get around this either through educating them or something else? 00:33:02 Tamara Hall: I had a client they refused to take cause the was nonverbal and doesn't feed himself 00:35:24 Tamara Hall: I also had clients that couldn't be placed because they said they were nonverbal and couldn't participate in therapy 00:35:36 Kelly King: Sounds like a case for the Disability Rights Network. 00:35:59 Lesley Cottrell: Reacted to "Sounds like a case f..." with πŸ‘πŸ» 00:37:08 Brandon Kijewski: The person from going to St Mary’s when was that? I have had success with Marshall BU in Huntington 00:37:32 Mena Seyed-Ashraf: For nonverbal folks, what communication services or therapy have been attempted? Is there a speech therapy or OT option that might help to teach a communication method that facilities could use (communication board, ASL, etc)? 00:38:13 Tamara Hall: I think it comes down to funding. 00:38:19 Charity Register: there needs to be facilities or floors dedicated to IDD individuals with dual diagnosis 00:38:33 heidi thomas: Reacted to "there needs to be fa..." with ❀️ 00:38:46 Julianna Hayden: Reacted to "I think it comes dow..." with πŸ‘ 00:38:57 Tamara Hall: Not enough staff and the staff they have are not trained adequately 00:39:00 Lauren Swager: Reacted to "there needs to be fa..." with ❀️ 00:39:51 Kelly King: Are you working with your Family to Family Health Information Center. There were issues during COVID where they were not allowing staff in and we (and disabikity rights) had to advocate for support to be allowed in 00:40:14 Jessica Noel: With potential budget cuts - staffing will only continue get worse 00:40:17 Jason Bowlick: Population declining in 47 out of 55 West Virginia Counties 00:40:27 Jason Bowlick: Population declining in 47 out of 55 West Virginia Counties | WBOY.com 00:40:36 Kelly King: Beds don’t give staff the capacity to address the individual needs 00:40:42 Julianna Hayden: The lack of providers is becoming worse throughout the state even for people who do not have IDD. I cannot get my granddaughter in with a general practitioner for a regular physical until the middle of 2025 00:41:05 Brandon Kijewski: Jason, that’s true, the 2020 census had WV as the highest % of population lost in the entire country 00:41:05 Jessica Noel: and the right KNOWLEDGE of people with different abilities/challenges 00:41:08 Colleen Lillard: Thank you Dr. Swager, yes we need more correct level of care beds. We need a broader continuum to meet those needs. We need crisis stabilization beds in the community as well 00:41:14 Lesley Cottrell: Reacted to "Thank you Dr. Swager..." with πŸ‘πŸ» 00:41:30 Lesley Cottrell: Reacted to "and the right KNOWLE..." with πŸ‘πŸ» 00:41:40 Lesley Cottrell: Reacted to "The lack of provider..." with πŸ‘πŸ» 00:41:45 Lesley Cottrell: Reacted to "Not enough staff and..." with ❀️ 00:41:52 Julianna Hayden: Reacted to "Beds don’t give staf..." with πŸ‘ 00:42:06 Julianna Hayden: Reacted to "With potential budge..." with πŸ‘ 00:42:07 Kelly King: I’ll inform National Family Voices, https://familyvoices.org 00:42:13 Tamara Hall: I think there has to be higher compensation as well. It takes a special person to work with very physically aggressive individuals 00:43:02 Jason Bowlick: Replying to "Jason, that’s true, ..." The census was from 2010-2020. That article was from 2022-2023 published recently... 00:44:07 Brandon Kijewski: Compensation also does matter, we can’t compete to do this job where someone may have to clean up a bowel movement at $12/hr; when a high schooler can get 15 at Burger King, it just can’t be competitive to even get the staff in the door 00:44:45 Tamara Hall: I completely agree Brandon. 00:44:48 Lesley Cottrell: That is the need for that flexibility between different types of care as needs ebb and flow. 00:44:57 Julianna Hayden: Reacted to "Compensation also do..." with πŸ‘ 00:45:37 Lesley Cottrell: Replying to "Compensation also do..." 100% 00:46:04 Jessica Noel: And the under availability of psych services/ABA/PT/OT/ST for people is really affecting people having no continuation of care - their psychiatrist/psychologist will recommend 2 hours per day of therapies that just aren't available to members 00:46:16 Charity Register: I think that is the issue that the state does not recognize the special needs of our vulnerable people and they have been ignored and now staff shortage, relocation of the workforce, lack of funding all make this problem now a crisis 00:46:16 Tamara Hall: I think our state is slowly evolving to have proper services for special needs individuals. I think if more services were offered when these individuals were children or they had more family supports they would less likely need put in a group home 00:47:01 Anastasia Riley: In addition to needing more providers in general in WV, it would also be great to have more community providers that are well versed in alternative communication and interactive (music, art, play, etc.) type therapies for people with more severe cognitive disabilities. 00:47:03 Jason Bowlick: There are state-run I/DD "Campuses". It does not meet the Olmstead Act. The state has to fund those without Federal assistance, and we can't fund the programs with 75% Federal Match. 00:47:14 Jessica Noel: Reacted to "Compensation also do..." with πŸ‘ 00:47:25 Colleen Lillard: Reacted to "There are state-run ..." with πŸ‘ 00:47:37 Julianna Hayden: Reacted to "There are state-run ..." with πŸ‘ 00:48:00 Kelly King: Reacted to "There are state-run …" with πŸ‘ 00:48:24 Julianna Hayden: Why do these "campuses" not meet the Olmstead Act? I'm not overly familiar 00:48:38 Tamara Hall: That's true. I heard BARH has come one of the key places where folks are dropped off and left. 00:48:45 Kelly King: Olmstead, https://archive.ada.gov/olmstead/index.html 00:48:59 Melina Danko: Speaking on lack of staffing- we often hear from families who want to keep their children at home but there are not home health nurses available in their area. The result of that lack of medical care results in hospitalizations and institutionalization. 00:49:24 Charity Register: I cant wait to hear from other states. There are models we can implement but funding I am sure is the major barrier 00:49:33 Julianna Hayden: Reacted to "I cant wait to hear ..." with πŸ‘ 00:49:38 Colleen Lillard: Reacted to "I cant wait to hear ..." with πŸ‘ 00:50:03 Tamara Hall: Also, what leads to institutionalization is parents getting older and they can no longer provide care for their special needs child 00:50:33 Lesley Cottrell: Reacted to "I cant wait to hear ..." with πŸ‘πŸ» 00:50:59 Julianna Hayden: Reacted to "Also, what leads to ..." with πŸ‘ 00:52:05 Mena Seyed-Ashraf: Perhaps a higher LOC supportive living home? Something like that? 00:53:02 Anastasia Riley: Replying to "There are state-run ..." Is it an over 8 person per home/campus rule with Olmstead? Differentiating between campus concept and group home in my head. 4-1 staff ratios max? Just curious how we can overcome some barriers for realistic community group peer settings. It is great in theory as long as can be free to explore community. 00:53:46 Lauren Swager: Clinically long term institutional almost always causes things to get worse. Needing acute PH or BH treatment or medical treatment or short term care is not institutionalization though. Our labeling of care and level of care is really important to use the right words. We also have to make sure we do not overpathologize risk or safety. this does not serve anyone well. 00:54:11 Charity Register: In a perfect world we would be able to offer our workforce pay that equals their importance and our clients would not have crisis but it would be great to find a way to meet their needs on a basic level when the world is not perfect. I have been working with IDD for 20 years and know our hearts are what keep us advocating and trying 00:54:31 Lesley Cottrell: Reacted to "Clinically long term..." with ❀️ 00:54:36 Julianna Hayden: Reacted to "In a perfect world w..." with πŸ‘ 00:54:53 Lesley Cottrell: Reacted to "Is it an over 8 pers..." with πŸ‘πŸ» 00:55:16 Misha McShane: Reacted to "Clinically long term..." with ❀️ 00:55:31 Lesley Cottrell: Replying to "In a perfect world w..." So true Charity. 00:56:04 Lauren Swager: The re-structuring of funding for high rates in the community and in home care away from hospitalization is key and needs revisited. We need to figure out how to pay providers and care givers a rate that supports the reality of the very important work they do. Caregiving is a full time job 00:56:19 gillian mccarty: Replying to "Clinically long term..." thank you I said I might not have used the right words lol 00:56:21 Lauren Swager: Reacted to "In a perfect world w..." with πŸ‘ 00:57:59 Lesley Cottrell: Replying to "Clinically long term..." Great open discussion - all good. 01:00:41 Charity Register: Replying to "Clinically long term..." I do think that in our rural areas a crisis team that could provide help in the home of the person, maybe additional staff for a short period may meet our clients better than an inpatient facility 01:01:11 Lesley Cottrell: Reacted to "I do think that in o..." with πŸ‘πŸ» 01:01:38 Jason Bowlick: Check out BMS's website for new residential facility options announced this week getting more funding: Public Notices (wv.gov) 01:01:44 heidi thomas: I guess a positive is that the Governor was mad about the decrease in IDD funding. Hopefully, he will follow up with that April session and legislators actually fix it out 01:01:46 Jason Bowlick: "SPA 24-0002, regarding authorization for a redesigned structure of the State's Residential Intensive Treatment (RIT) and Specialized RIT (SRIT) model...." 01:02:02 Charity Register: Reacted to "I guess a positive i..." with πŸ‘ 01:02:05 Lesley Cottrell: Reacted to "I guess a positive i..." with ❀️ 01:02:11 Lauren Swager: Reacted to "I guess a positive i..." with ❀️ 01:02:42 Tamara Hall: I heard that as well that North Carolina has great services 01:02:46 Heather Merritt: CA - https://www.dds.ca.gov/ 01:02:56 Lesley Cottrell: I think there are definitely pieces of that previous model Theresa - that would be significantly beneficial! 01:03:34 Heather Merritt: CA Regional Center model is working well, having been a part of that system for several years. Check it out here: https://www.dds.ca.gov/rc/ 01:03:38 Lauren Swager: There are great models but models have to be funded correctly. They will not work without appropriate funding at the right level of at the right time. 01:03:49 Teresa Bhaile: Reacted to "There are great mode…" with ❀️ 01:04:14 Colleen Lillard: With a focus on individuals with IDD in the forensic system, our diversion committee has been re-upped for this year. We had great access to our legislators and I'm hopeful our IDD subgroup can look at these issues and make some good plans to the legislature this year as well 01:04:35 heidi thomas: Reacted to "With a focus on indi..." with ❀️ 01:04:38 Charity Register: Reacted to "With a focus on indi..." with ❀️ 01:04:47 Lesley Cottrell: There are some great blueprints people have put together to request the right funding in the right way. Very scripted requests with justification and everything. Those are from NC but California (which is somewhat different from WV :-)) and Texas 01:04:58 Lesley Cottrell: We will add those to the resources in the follow up email. 01:05:07 Charity Register: Reacted to "We will add those to..." with πŸ‘ 01:05:08 Lesley Cottrell: Reacted to "With a focus on indi..." with ❀️ 01:05:14 Heather Merritt: Reacted to "We will add those to..." with πŸ‘ 01:06:18 Lauren Swager: Reacted to "With a focus on indi..." with ❀️ 01:08:06 Lesley Cottrell: Thanks Marc. I’ll be sure to add more about it too. 01:08:08 Mary Wilson: It’s the electronic monitoring system. 01:10:41 Susan Given: That's not the population that we are discussing. 01:11:46 Mena Seyed-Ashraf: Combined staffing facilities...the licensing and training might incredibly difficult 01:11:57 Julianna Hayden: Reacted to "Combined staffing fa..." with πŸ‘ 01:12:06 Julianna Hayden: Replying to "Combined staffing fa..." Absolutely 01:12:08 Tamara Hall: This is such a great discussion 01:12:30 Brandon Kijewski: Mean, I think the idea is great but that is a very important point, like who does the direct care training? Which agency is responsible? 01:12:32 Lauren Swager: There is a spectrum of needs, a spectrum of placments, staffing and level of care. You are describing that we need different levels of intermittent care and what that could look like. Great discussion 01:12:44 Julianna Hayden: Reacted to "There is a spectrum ..." with ❀️ 01:12:49 Tamara Hall: Reacted to "There is a spectrum ..." with ❀️ 01:12:50 Mena Seyed-Ashraf: Reacted to "There is a spectrum ..." with ❀️ 01:12:58 Charity Register: Reacted to "There is a spectrum ..." with πŸ‘ 01:13:01 Tamara Hall: Thank you! 01:13:04 Anastasia Riley: Reacted to "There is a spectrum ..." with β™₯️ 01:13:20 Julianna Hayden: I would like a certificate please 01:13:21 Mena Seyed-Ashraf: I was hearing it as being similar to how children's LOCs are sometimes structured. 01:13:22 Dawn Meeks: I would like a certificate of attendance. 01:13:24 Anastasia Riley: Reacted to "There are some great..." with β™₯️ 01:13:26 Marc Wilson: Sure I'll take a certificate of attendance. Thanks.. 01:13:28 Kimberly Corley: Thank you and yes I need a ceu certificate please? 01:13:31 Anastasia Riley: Reacted to "CA Regional Center m..." with β™₯️ 01:13:32 heidi thomas: Thank you! 01:13:33 Tamara Hall: I need a certificate of attendance. Tamara.l.hall@wv.gov 01:13:45 Tamara Hall: Ty erveryone. Have a great day. 01:13:45 Rachel Aker: Certificate of Attendance please. Thank you 01:13:49 Crystal Norman: I would like a certificate of attendance 01:13:50 Charity Register: THank you. I will take a certificate of attendance please 01:13:53 Heather Dodge: hdodge@rns-watch.org Heather Dodge 01:13:54 Angela Malcomb: I need certificate 01:13:58 Sarah G: I would like a certificate, please. Sarah Graham. Thank you 01:14:11 chris Nooney: I would like a certificate. thanks Willa.Nooney@Prestera.org 01:15:09 Lesley Cottrell: I’ll send certificates by the end of the week. Thanks everyone. 01:15:18 Kimberly Corley: Replying to "Thank you and yes I ..." Kimberly.J.Corley@WV.Gov 01:15:24 Lesley Cottrell: Reacted to "Kimberly.J.Corley@WV..." with πŸ‘πŸ»