October 2019 - Down Syndrome Awareness Month

Disability Resource Library Newsletter

Up with Downs

October is Down Syndrome Awareness Month and provides a great opportunity to spread awareness, talk about inclusion in your community, and promote advocacy. Learn more about the areas of advocacy the CED is involved.

Take a look at a few of the resources our Disability Resource Library has to offer and, as always, please feel free to reach out to Roger May, the Media Resource Specialist for the Center for Excellence in Disabilities, via email at roger.may@hsc.wvu.edu or by phone at 304-205-6434.

Featured Resources

All featured resources are available to borrow from the DRL
To browse more resources, click here.

Babies with Down Syndrome: A New Parents' Guide

Babies with Down Syndrome cover

Edited by Susan J. Skallerup

This completely revised and updated book covers medical care, daily care, family life, development, early intervention, learning, legal rights, and much more related to the life of a child with Down Syndrome from birth through age five.

Borrow Babies with Down Syndrome: A New Parents' Guide from our library.

A Parent's Guide to Down Syndrome: Toward a Brighter Future

By Siegfried M. Pueschel

Crossing the lifespan, this thorough volume highlights developmental stages and shows recent advances that can improve a child's quality of life. New topics covered include innovative services, programs and support groups; the impact of play on gross motor development; and the association of Down Syndrome with other disorders. Written by leading experts, many of whom are parents of children with Down Syndrome, this book offers readers the advice and insight they need.

Borrow A Parent's Guide to Down Syndrome: Toward a Brighter Future from our library.

Down Syndrome - The First 18 Months (DVD)

Written, Produced, and Directed by Will Schermerhorn

This DVD is a reassuring and realistic introduction to the unique joys and challenges that children with Down syndrome bring to their families during the critical first 18 to 24 months of life.

Borrow Down Syndrome - The First 18 Months from our library.

Fine Motor Skills for Children with Down Syndrome

Fine Motor Skills for Children with Down Syndrom cover

By Maryanne Bruni

This expanded edition explains the best practices and procedures for helping children master the finger and hand skills needed for home and school activities. Using an easy-to-understand visual model, the book explains the building blocks of fine motor development.

Borrow Fine Motor Skills for Children with Down Syndrome from our library.

My Friend Has Down Syndrome

By Jennifer Moore-Mallinos

This sensitively written book is a story about two children who meet at summer camp and the warm friendship that develops between them despite the fact that one of them has Down Syndrome. Both girls learn that everybody is good at something, and that by helping each other overcome their fears and difficulties, they can accomplish a great deal.

Borrow My Friend Has Down Syndrome from our library.

Count Us In - Growing Up with Down Syndrome

Count Us In

By Michael Levitz and Jason Kingsley

Michell Levitz and Jason Kingsley share their innermost thoughts, feelings, hopes and dreams, their lifelong friendship, and experiences of growing up with Down Syndrome.

Borrow Count Us In - Growing Up with Down Syndrome from our library.

Tangle Therapy

This twistable therapy device is an ergonomic approach to hand therapy, minor stress relief, smoking cessation, building fine motor skills, and much more. Soft, texturized rubber bumps on this Tangle provide a one-of-a-kind sensory and tactile experience in your hands. The motion is calming and fun!

Borrow Tangle Therapy from our library.

Navigation Tips - Access to Assistive Technology

The West Virginia Assistive Technology System (WVATS) provides access to assistive technology devices and services to West Virginia residents with disabilities, including older West Virginians. Devices can be as complex as computers with screen reading software or as simple as Velcro used in place of buttons or shoe laces. If you or someone you know has difficulty performing daily tasks at home, work, or school WVATS may be able to help. Visit WVATS.

A Child's Champion

a photo of Shannon Hedrick

This month's Child's Champion is Shannon Hedrick, Outreach Collaborator with Mid-Ohio Valley WIC. Shannon began working with children when she was still in high school, which instilled in her a passion for service. Shannon strives to make a difference in the lives of every family she encounters and is quick to acknowledge the support of her colleagues, family, and friends in helping her do the work of helping others. "Children bring joy to my life, which inspires me to want to help families receive all the resources and help available to them," she said.

Each year, Shannon helps coordinate the Wirt and Wood County Baby Shower, which helps more than 75 families annually. She also serves seven additional counties: Calhoun, Gilmer, Jackson, Mason, Pleasants, and Ritchie. "Together, we can help reach families and make a difference," she added.

When asked about some of her favorite quotes, Shannon was happy to share a few that mean a great deal to her. The acronym TEAM - Together Everyone Achieves More - holds a special place for her. And the other? "Unless someone like you cares a whole awful lot, nothing is going to get better. It's not," from The Lorax, by Dr. Seuss. We're thankful Shannon cares a whole awful lot and we're proud to share our October's Child Champion with you!

Do you know someone you'd like to nominate to be featured as a Child's Champion in our monthly newsletter? Please let us know! Contact Roger May, the Media Resource Specialist for the Center for Excellence in Disabilities, via email at roger.may@hsc.wvu.edu or by phone at 304-205-6434.