October 2020 - Down Syndrome Awareness and Resources

Disability Resource Library Newsletter

Please note that we are loaning items at this time and have established thorough policies to clean, sanitize, and disinfect all outgoing and incoming items to and from the library. If you have a critical need, please contact us.

October 2020 - Down Syndrome Awareness and Resources

October is recognized as National Down Syndrome Month. Nationwide, many of these celebrations and events have been moved to virtual environments because of COVID-19, so please check with your local organization like the Down Syndrome Network of West Virginia to see what they recommend. You can learn more about how West Virginia is celebrating National Down Syndrome Awareness Month by connecting with the Down Syndrome Network of West Virginia.

Take a look at a few of the resources our Disability Resource Library provides and, as always, please feel free to reach out to Roger May, the Media Resource Specialist for the Center for Excellence in Disabilities, via email at roger.may@hsc.wvu.edu or by phone at 304-205-6434.

Featured Resources

Arrangements for borrowing or returning resources during this COVID period can be made by calling 304-205-6434.
Browse more resources.

The Early Intervention Guidebook for Families and Professionals By Bonnie Keilty

Designed for educators who find themselves challenged by the diverse needs and interests of their elementary school readers. The book focuses on differentiating reading instruction in grades 2-5 and highlights classroom vignettes and student work that reflect the needs of students who might be considered struggling The author, however, advises teachers to reconsider this popular but damaging label for readers. They inspire practitioners instead to turn-around their own pedagogical stance, grounding their practical advice in a socio-cultural theoretical framework with a focus on critical literacy. You can borrow The Early Intervention Guidebook for Families and Professionals now.

Early Communication Skills for Children with Down Syndrome by Libby Kumin, Ph.D, CCC-SLP

Early Communication Skills for Children with Down Syndrome

This new book, an updated expanded edition of [an earlier edition] focuses on speech and language development from birth through the stage of making e-work phrases, which is often around age 5 or 6, but can occur later. [It] incorporates the latest research and offers a wealth of information on: articulation and phonology, speech and intelligibility, hearing loss, apraxia, pragmatics, reading and literacy, assessment and treatment, and augmentative and alternative communication. From explanation of the speech language assessment to descriptions of what to expect when a child enters school and from new checklists on evaluating and treating speech problems to numerous home activities, this book delivers what families need to ensure their child meets his communication potential.

You can borrow Early Communication Skills for Children with Down Syndrome from our library now.

Gross Motor Skills in Children with Down Syndrome: A Guide for Parents and Professionals by Patricia C. Winders, P.T.

Children with Down syndrome master basic gross motor skills-everything from rolling over to running-just as their peers do, but may need additional help. This guide illustrates more than 100 activities for parents and professionals to practice with children from birth through age six. Checklists allow readers to plan and track a child's progress. You can borrow Gross Motor Skills in Children with Down Syndrome: A Guide for Parents and Professionals from our library now.

My Friend Has Down Syndrome by Nuria Roca and Jennifer Moore-Mallinos

the cover of My Friend Has Down Syndrome

This sensitively written book is a story about two children who meet at summer camp and the warm friendship that develops between them despite the fact that one of them has Down Syndrome. Both girls learn that everybody is good at something, and that by helping each other overcome their fears and difficulties, they can accomplish a great deal.

You can borrow My Friend Has Down Syndrome now!

Corey, Disability Awareness Puppet

Our Disability Awareness Puppets are designed to dispel fears, myths, and misconceptions about people with disabilities. There are a total of six individual multicultural, full-bodied hand and rod puppets. Corey has Down syndrome. He learns things at a slower pace than his friends but when given the help and support he needs, Corey can be counted on to do a good job and help others, too.

You can borrow Corey and our other Disability Awareness Puppets from our library now!

Navigation Tips - Accessing Assistive Technology

The West Virginia Assistive Technology System (WVATS) provides access to assistive technology devices and services to West Virginia residents with disabilities, including older West Virginians. Devices can be as complex as computers with screen reading software or as simple as Velcro used in place of buttons or shoe laces. If you or someone you know has difficulty performing daily tasks at home, work, or school WVATS may be able to help. Visit WVATS.

Central and Rural Appalachian Culture: What Every Social Service Provider Needs to Know to Promote Effectivess

October 14, 2020
9:00 am -12:30 pm
Zoom online webinar
Three hours of social work and nursing CEUs are available.

Understanding Appalachian culture and how the region’s history and values impact service delivery and utilization for individuals with disabilities and their families allows providers to better serve these clients.

In this course, providers will receive an overview of the central Appalachian region, it’s history, culture, and values. In addition, we will examine work practices that will build rapport with clients and communities throughout the region. Examples of how service delivery can be impacted and adapted to be better received and implemented will be woven into the training. Any social service provider working in rural communities can benefit from this training.

Registration is free, but required in advance. Register in advance for this meeting: https://wvumdtv.zoom.us/meeting/register/tJYlduGvrjkqH9aZFfNaNck5bytHviXeOeOB

After registering, you will receive a confirmation email containing information about joining the meeting. If you have any questions, email Roger May at roger.may@hsc.wvu.edu.

A Child's Champion

a photo of Bella

This month's Child's Champion is Bella Derby. Bella, 13, is a homeschooled 8th grader, who loves to learn and works very hard. She has participated in WVU CED's DreamCatchers program for nearly two years. Bella lives with her sister, Helayna, and her parents, Dale and Stephanie. She is very close to her grandparents, Junior and DiAnn Derby and Phyllis Barclay.

In addition to DreamCatchers, Bella also participates in Miracle League Baseball through Stepping Stones, which is another great resource for children and adults that may have disabilities. She loves to go to church and visit Pigeon Forge, Tennessee, where her family spends Thanksgiving every year. "Bella loves life. She loves being a part of DreamCatchers. It gives her that sense of having a tribe, friendship, and belonging," Bella's mother, Stephanie, said.

Bella has always loved music and dance. She has taken ballet, acro-flex, and musical theater before becoming part of DreamCatchers. "When I heard about the program, I thought this would be a great opportunity for our animated, joyful, and sassy daughter," Stephanie added. "When it came time for the first class, she went right in and has loved it ever since. It became the highlight of her week," Stephanie shared. Bella said she loved making new friends and hanging out with all the people at DreamCatchers. She also said she liked helping make the props and other art and the singing too. "We are a homeschool family, so DreamCatchers was a great opportunity to explore the arts and socialize with her peers," Stephanie said. "I would recommend all parents, especially those with children that may have some challenges to overcome to participate in DreamCatchers," she added.

Please join us in celebrating Bella!

Do you know someone you'd like to nominate to be featured as a Child's Champion in our monthly newsletter? Please let us know! Contact Roger May, the Media Resource Specialist for the Center for Excellence in Disabilities, via email at roger.may@hsc.wvu.edu or by phone at 304-205-6434.