Resources

CED Sister Agencies

  • Disability Rights of West Virginia - Protects and advocates for the human and legal rights of persons with disabilities.
  • WV Developmental Disabilities Council – Works to assure that West Virginians with developmental disabilities receive the services, supports, and other forms of assistance they need to exercise self-determination and achieve independence, productivity, integration and inclusion in the community.

WV Disability Services

Advocacy Resources

  • Fair Shake Network - The Fair Shake Network is a West Virginia organization dedicated to advocating for disability rights and educating policymakers and the public about disability issues.
  • Legal Aid of West Virginia - focuses its work in three broad program areas: Civil Legal Aid, Behavioral Health Advocacy, and Long-Term and Elder Care (Ombudsman).
  • People First WV - People First is a self-advocacy organization that helps individuals with disabilities learn how to be their own best advocate.
  • WV Human Rights Commission - The WV Human Rights Commission advocates for respect, tolerance, and mutual understanding in communities regardless of race, gender, religious persuasion, ethnicity, or disability.

Aging Resources

Children & Family Resources

  • Help Me Grow West Virginia – Parents, families and friends can call Help Me Grow directly to be connected to a care coordinator who can talk with them about how their child is doing, mail a developmental screening tool and connect them to the appropriate resources.
  • Mountain State Healthy Families - accredited in-home family education program offered free of charge to families in Cabell, Lincoln, Logan, Mason, and Wayne Counties in WV.
  • Right from the Start - a free, statewide program that helps West Virginia mothers and their babies lead healthier lives by offering home visitation services with a Designated Care Coordinator (registered nurse or licensed social worker).
  • Strengthening Families WV - works with communities and families to promote and advance the well-being of children, making their needs and healthy development a priority.
  • WV Early Head Start/Head Start – Early Head Start serves pregnant women, infants, and toddlers. Early Head Start programs are available to the family until the child turns three years old and is ready to transition into Head Start or another pre-K program.
  • WV Birth to Three - WV Birth to Three is a statewide system of services and supports for children under age three who have a delay in their development, or may be at risk of having a delay, and their family.
  • WV Family Resource Network - organizations that respond to the needs and opportunities of the community. There is a FRN in each county that maintains a local resource directory for social services available in their area.
  • WV Parent Training and Information - empowers parents of children with disabilities in their roles as parents, decision makers, and advocates for their children.
  • WVU Medicine Neurodevelopmental Center – provides treatment for children with neurodevelopmental delays including occupational therapy, physical therapy, speech-language therapy and applied behavior analysis.

Community Living Resources

Educational Resources

  • WV Office of Special Education – Office within the WV Department of Education responsible for educational supports for children and youth with learning difficulties.
  • Pathways to the Future – is a collection of resources, tools and people to help students with disabilities, through the journey from youth to adulthood.
  • WV Parent-Educator Resource Center - A team consisting of a parent of a special needs child and an educator staffs each PERC. The purpose is to build partnerships between parents and educators to ensure that children receive the highest educational opportunities and achievement possible.
  • A Parent's Advocacy Guide to Special Education - This Guide was written to help parents understand Policy 2419, Regulations for the Education of Students with Exceptionalities.
  • Understood for Learning & Attention Issues – Education and resources for parents and children who are struggling with learning and attention issues.

Employment Resources

WVABLE

Medical & Insurance Services

WV Medicaid Waiver Programs

  • Aged and Disabled Waiver (ADW)- for people age 18 or older who meet the medical criteria of receiving nursing home care and who meet financial requirements.
  • Intellectual/Developmental Disabilities Waiver (IDDW) - for individuals who have intellectual disabilities and/or developmental disabilities who would otherwise be institutionalized.
  • Children with Serious Emotional Disturbance Waiver (CSEDW) - provides support to children with severe serious emotional disturbances by helping to keep them with their families, in the home and with a support network while receiving the services they need to improve their outcomes.
  • Substance Use Disorder (SUD) Waiver - addresses the immediate and long-term physical, mental and social needs of individuals with substance use disorders, and promotes and sustains their long-term recovery.
  • Traumatic Brain Injury Waiver (TBIW) - for people age 3 or older who have a traumatic brain injury defined as a non-degenerative, non-congenital insult to the brain caused by an external physical force resulting in total or partial functional disability and/or psychosocial impairment or an injury caused by anoxia due to near drowning and who meets the medical criteria of receiving nursing home care.

Other Resources

  • Children with Disabilities Community Service Program - an optional Medicaid program that allows a child with a severe disability who is eligible to receive the level of care provided in a medical institution receive medical assistance with the parent’s income waived.
  • WV inROADS - is an online tool that allows users to evaluate for eligibility and apply for benefits offered by the state of WV.
  • WV HealthCheck - a child preventive health component of Medicaid. Federal law requires that state Medicaid programs provide medically necessary health care services to Medicaid-eligible children.
  • WV Children’s Health Insurance Program (CHIP) - a program that provides health insurance to children who meet the specified requirements and qualify.
  • WV Medicaid Work Incentive M-WIN is a work incentive for people with disabilities or chronic health conditions. It allows individuals who work, to pay a monthly premium and keep or obtain Medicaid healthcare coverage.
  • WVU Speech and Hearing Clinics – clinics held at the WVU Health Sciences Center and in Allen Hall on Evansdale Campus in Morgantown.

Mental Health

  • WV Community Mental Health Centers - resource map of community mental health center for children and adults with mental illness, intellectual disabilities, and substance abuse issues.
  • WV Division of Adult Behavioral Health (WVDHHR) - provides access to support and services to meet the mental health and co-occurring needs of adults and transitional age youth, enabling them to live, learn, work, and participate actively in their communities.
  • Help4WV - offers a 24/7 call, chat, and text line that provides immediate help for any West Virginian struggling with an addiction or mental health issue

Social Services

  • WVDOT Transportation Providers Directory - includes listings by county for Public Transportation, Specialized Transportation, Taxi services, and Head Start Programs.
  • WV Family Resource Networks - are organizations that respond to the needs and opportunities of the community. Each FRN has its own county level directory of local resources.
  • WV Supplemental Nutrition Assistance Program (SNAP) - provides monthly benefits to help eligible households buy food.
  • West Virginia WIC program - provides nutrition counseling, parenting advice, breastfeeding support, food assistance, and referrals to help you and your family live a healthy life.
  • WV WORKS - West Virginia's Temporary Assistance for Needy Families (TANF) Program. Assists economically dependent and at-risk families to become self-supporting, enhancing the well-being of children, and on assisting families near the poverty level to remain self-sufficient.

Disability Organizations by Type of Disability

Local Resources

  • Brain Injury Association WV – resources in WV for individuals with brain injuries and their families.
  • Easterseals – provides autism diagnosis and ABA therapy as well as early intervention and outpatient medical rehabilitation programs to children and adults with disabilities.
  • Insite/VIISA program for the blind – a home-based program for the families of visually impaired and visually impaired –multihandicapped infants and young children between the ages of birth and five eyars.
  • National Federation of the Blind WV – improves blind individuals lives through advocacy, education, research, technology, and programs encouraging independence and self-confidence.
  • Ski*Hi Preschool Program – a home-based preschool/parent education program for deaf and hard of hearing children.
  • The WV Guide to Accessing Services for Individuals with Autism Spectrum Disorder - booklet about services, resources and information for West Virginians.
  • WV Autism Training Center – provides support to individuals with autism spectrum disorders as they pursue a life of quality.
  • WV Commission for the Deaf and Hard of Hearing - advocates for, develops, and coordinates public policies, regulations, and programs to assure full and equal opportunity for persons who are deaf and hard of hearing in West Virginia.
  • WV Speech-Language-Hearing Association – professional association representing speech-language pathologists, audiologists, and deaf educators across the state of WV.
  • Easter Seals Autism (ASD) Services

National Resources

  • Autism Speaks - dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families through advocacy and support; increasing understanding and acceptance of people with autism spectrum disorder; and advancing research into causes and better interventions for autism spectrum disorder and related conditions.
  • Brain Injury Association of America – national organization that works to advance awareness, research, treatment, and education and to improve the quality of life for all people affected by brain injury.
  • Multiple Sclerosis Society – organization dedicated to helping individuals with MS best lives as we stop MS in its tracks, restore what has been lost and end MS forever.
  • Muscular Dystrophy Association – association committed to saving and improving the lives of kids and adults living with muscular dystrophy and related life-threatening diseases.
  • National Down Syndrome Society - the leading human rights organization for all individuals with Down syndrome.
  • National Alliance on Mental Illness – the nation’s largest mental health organization dedicated to building better lives for the millions of Americans affected by mental illness.
  • United Cerebral Palsy - promotes the independence, productivity and full citizenship of people with cerebral palsy, intellectual and developmental disabilities, and other conditions, through an affiliate network

Other National Resources

  • Adminstration for Community Living – Administration on Disabilities that works with states, communities, and partners in the disability networks to increase the independence, productivity, and community integration of individuals with disabilities.
  • Association on University Centers on Disabilities (AUCD) – membership organization that supports and promotes a national network of university-based programs that advocate and provide resources for all people living with developmental or other disabilities and special health needs.
  • Centers for Disease Control and Prevention – the nation’s health protection agency that has data, statistics, and informational materials on various diseases, conditions and healthy living.
  • Disability.gov – the only non-regulatory federal agency that promotes policies and coordinates with employers and all levels of government to increase workplace success for people with disabilities.
  • IDEA – information and resources from the Individuals with Disabilities Education Act for students, parents, educators, service providers, and grantees.
  • Mid-Atlantic ADA Center – provides information, guidance and training on the Americans with Disabilities Act (ADA), tailored to meet the needs of businesses, government entities, organizations, and individuals in the Mid-Atlantic Region.
  • Parent Favorites from Birth to Three – collection of highest trending resources for parents, designed to help guide parents to think about the best way to meet their child’s individual needs.
  • Social Security Disability Benefits – Social Security pays disability benefits to people who can’t work because they have a medical condition that’s expected to last at least one year or result in death.
  • Ticket to Work - The Ticket to Work (Ticket) program offers Social Security beneficiaries with disabilities the choices, opportunities and supports needed to find and keep employment, increase their earnings through work, and reduce their reliance on cash benefits to the greatest extent possible.

Interactive tools and screening resources

  • CDC Milestone Tracker App - Track your child’s milestones from age 2 months to 5 years with CDC’s easy-to-use illustrated checklists; get tips from CDC for encouraging your child’s development; and find out what to do if you are ever concerned about how your child is developing.
  • Healthy Growth App - developed by the American Academy of Pediatrics gives care providers the unique ability to create custom handouts for parents on vital topics of healthy growth, nutrition, and physical activity for children 5 years of age and younger. The app is available on the Apple App Store and Google Play Store.
  • Promoting Health for Children and Youth with Special Health Care Needs – tip sheet for pediatric health care professionals.
  • Physical Developmental Delays: What to Look for Tool - an interactive online tool for parents of children ages 5 and under to use when they are concerned about their child’s motor development. Pediatricians who are approached by parents and caregivers with these concerns can refer to the AAP neuromotor screening resources.